testing, testing…

We have had a difficult few months, and I haven’t felt much like blogging.  We were on top of the world:  I had just started a job that I absolutely love, and E was having so much fun at daycare.  Then she had a series of illnesses in a row, followed by a some distressing symptoms and a change in “phenotype” (ahhh, medical lingo). Her doctor even referred to it as “alarming” (thanks for the calming words, doc ;)

I will save you the suspense.  She is currently on medication and after a medication allergy and trip to the ER, it seems that she is responding well at the moment.  She has even been cleared to attend an upcoming out-of-province medical appointment. 

But even though her doctors have kicked in to high gear over this latest development, we are staring down a series of new tests, with still no diagnosis in sight, after years of test after test. 

And then, just when I needed it most this popped in to my inbox.  This is why I blog.  I don’t know if anyone reads it, but I gather so much support and strength from reading what other moms have written I feel like I should share as well.  Just in case there’s someone else out there in a similar situation who might need to know that they’re not alone.  Thanks Carrie’s mom <3

Plus, I couldn’t have said it better, replace Carrie with E and these would be my thoughts exactly: 

I’ve become so grateful for all the little things. Carrie is kind in a way I’ve never seen in a child. Kids grow up too fast and because of her delays, I get to hold on to my baby Carrie just a little bit longer. We fight so much harder for each of her accomplishments so we get to appreciate all of her changes more than if they came easily to her. This house is like cheer leading camp with all the dances and celebration we do for each of my girl’s milestones.

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